How many of you participated in the ALS Ice bucket challenge in 2014? I did and that is how I found out about this terrible disease. The event raised a tremendous amount of money and educated so many people.
I will spend the rest of my days educating and informing people on this disease and how they can help.
We will raise awareness by creating events, speaking engagements, novelty items such as bracelets and koozies, along with social media.
Raise Research Funds
"This is not an incurable disease, it is an under-funded one."
Because of the ALS ice bucket challenge, hundreds of millions of dollars were raised. The medication I am now on, Radicava, is a direct result of those funds.
Again, everything we raise will go directly to efforts to raise money for a cure so our kids do not have to experience this deadly disease.